After brooding about this all day I have come to two conclusions, 1 I wish it had never had happened, and 2 I am not going to blog about our--or my--interactions with staff (some of whom are excellent) anymore. This is about Jenni. She is sick, and needs us--not a sideshow.
So back to Jenni.
As Steph wrote before, we have seen her eyes today, which is very nice. Her Oxygen level on the vent is at 50% higher than yesterday, but lower than late last night. Her heart rate is quite low--a real concern. When they suctioned out her lungs today nothing came out. We are not sure what that means. We are coming to the end of the IV course of factor VII.
We'll wait 24 hours then reassess. Dr. Katz has e-mailed me and was rather gracious--he is heavily invested in Jenni.
We are waiting for tomorrow.
Grace and Peace
Layne
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18 comments:
Sometimes they forget they are "D-o-c" not G-o-d,and that our loved ones are,to us,people,not cases.We are still praying for all of you.Don't give up!
We are so sorry about all of this Layne. We are praying for the docs and nurses to cooperate and have compassion, and we are praying for Jenni and your family.
Love,
Beth & Nic Hall
Keep your head high....we're still praying.
Matt and Makia
You handled that better than I would have. I would be in prison requiring bail.
Furthermore, Jenni's HIPPA agreement probably has your name or some identifier (immediate family) listed on there somewhere as someone who can discuss medical treatment in Josh's absence; while of course Josh retains final say-so in these difficult times. Since Josh, and presumably, you and the rest of the family came together in agreement with this latest treatment, there is no conflict here. The medic/doctor was completely out of line and should face reprimand for his action.
At the very least, if his intention was to stop this treatment to prepare for a another one, his choice of words was very poor and started the snowball downhill. Which again, re-iterates how poor doctors in general are with "bedside" manner.
I'm sorry this happened. If you need to vent, give me a call.
Layne please keep you head up high and stand your ground for the family. I will keep you and the family in my prayers. Love and concern
Phyllis
These people have treated you all shamelessly!! I used to think Duke was the best place to go, but I don't any more. After reading the way y'all have been treated, that hospital has come way down in my view.
But, if I understood the last line, have they removed this nurse to someone else's case and he won't be on Jenni's anymore?
Suzanne T.
I am so sorry that on top of everything else, you are having to deal with doctors who are inconsiderate and well past the point of rude.
I know Josh talked in earlier posts about a patient advocate--don't hesitate! That's what they are there for!
Still praying!
I am so sorry to hear this. with everything going on, this is so wrong. I talked to a dr. friend of mine and he said
"Layne's treatment by that doc should be reported to the hospital administrator."
I will tell you all i am not the most religious of persons, but i have been praying!
i am so glad that jenni has been blessed with such a loving and supportive family. she knows it......
robin hughes
Keep your eyes on Jesus. Satan couldn't possibly like what's going on here. He'd like nothing better than getting you all to focus your energies somewhere besides on the real enemy, him. I absolutely agree with you the doctor was unprofessional and insensitive, but he doesn't matter. Keep your armor on and stay focused. Having done all to stand, stand. We're all standing with you.
Pam
Layne my God it just never stops with those Doctors. I know as we had similiar run in's about Selena. YOU ARE IN THE RIGHT! To have him call in the police at a time like this. I am thinking this is the doctor we have had the run in's with all week?
Keep your head up high...stand up not only for Jenni's right's but FOR ALL OF YOU AS WELL.
My prayers are with you & yours. Tell Debbie I send my love. Is there a way to send you all my email?
Love & prayers,
Mary Parker
Mary my e-mail is blaise73@yahoo.com
I know exactly how you feel as I had the same situation with my brother. It is my opinion that medical ethics no longer exist. I believe the medical profession treats patients with the attitude "let this one go for there will be another one tomorrow".
Charles Harrelson charrelson@charter.net
You are a better person than I am. I am a hot head anyway, and when it comes to a family or loved one, don't be playing with me. I am still praying for you and your family. Just you just keep being Jenny's brother and do what you have to do. My thoughts are with all of you hour by hour. God love you all!
I think you should ask to see Jennis HIPPA to see just who is exactly
on the list for the DR.S to give info to. This could probably solve some issues. Sometimes the docs do not look at the paperwork before they start
talking. Ive been in the same situation with my husband and his children
by a previous marriage,so just stand your ground and dont let them run over you, because some of them think they are GOD. Still praying for all of you.GOD BLESS YOU!!!
Please don't think that all of the nurses and doc, at Duke, are the same. Sometimes they forget they are dealing with real people with "LOTS" of emotion for their loved ones. You guys have handled this very well and will be blessed for that alone. As for the RN's and DR's we must pray. We will continue to keep Jenni and all of the family in ours thoughts and prayers.
Kenny King & Clara Smith
I find that doctor's behavior absolutely appalling. I do hope you'll be certain to report him to hospital administration to save others this grievous treatment. When someone gets married that don't become divorced from the family they've grown up with. They expand their family to include someone special enough to be part of the people most important in the world to them. Even if the law is written so inappropriately as to state spousal disclosure only, he could have been far more tactful in his approach. I won't even comment on making you visit with someone else present as if you're going to harm the person you're defending, calling the police, and worst of all making those comments in front of Jenni because I don't think I could be civil in a public forum. That nasty attitude may be entertaining on "House" but if he's too confused to differentiate between television and the real world, I would have serious concerns about his medical ability. I know you're better people than he and will want to focus on Jenni so I'll be outraged and angry for you so you can put this down as one more burden you don't need weighing on you. Know that you're in my thoughts and if I can be of assistance, I'm half way between Durham and Rockingham will be happy to help in either direction needed.
Charlene Singletary
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