Monday, March 9, 2009

Introduction

Jenni has now been at Duke Medical Center for eight days. We don't have too much information on exactly what has been happening with her health, but we do know that things went downhill fast the first weekend of March and have pretty much stabilized since we arrived. We do know the following:

  • She has graft vs. host disease in her eyes and mouth (not the primary concern, but frustrating for her).
  • She has fluid in her lungs, and a bronchoscopy showed evidence that there had been bleeding in the lungs as well (DAH). They are treating the fluid with lasix (which will also help her kidneys, from what I understand) and the rest with steroids.
  • She has CMV, which appears to be the main thing affecting her lungs.
  • She has TTP (thrombotic thrombocytopenic purpura), which is what the focus of the treatments have been on. They're treating this with plasmapheresis. The doctors seem to think that this is the driving factor behind the other issues.
  • Her blood sugar is bouncing all over the place. This morning it was 96 (normal range) but it has been as high as 500+. They have a bag of IV insulin running at all times.
  • She has extreme joint pain in her legs that no one seems to understand, but that they have treated with diloted (hope I spelled that correctly). It might be because of the increased steroids, but it might also be due to fluid buildup from her poor kidney functions.
In any case, there are so many things going wrong right now that I have probably forgotten something, so please forgive me if I have. I'm beginning this project to help fund Jenni's caregivers (short term goal) and cover any other medical expenses that arise due to her current condition (long term goal). On this site, you'll mainly find updates on Jenni's condition, but you may also see the occasional post about Adsense or my goal of making money online while Jenni is out on disability and I'm missing so much work.

Hopefully we'll be able to generate enough traffic to help pay the bills. Notice the emphasis on traffic. Although there is an option to donate at the bottom of the page, all you need to do is visit the page to help us out financially (thanks to Adsense). Thanks for everyone's support and prayers!



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35 comments:

Nurse Hall said...

Josh,
I am a friend of Chad Murphy's and also teach at HHS. I will definitely keep you and Jenni in my prayers. God will see you through all of this - stand on His Word and you will be comforted and blessed. Let us know how we can specifically pray for you and Jenni.
Donna Hall

Anonymous said...

I am a friend of Tiffany Pursley. Just want you to know I will be praying.
Sheila

Anonymous said...

Hello,
I am a friend of Jenni and Tiffany Pursley. We were working together in Poland. Jenni is a wonderful lady and God loves her and everything will be OK. I will pray for her.
Gala

hdsp8 said...

Judy and Jenni, I am praying for you. God is our strength and refuse in times like these.

Beverly said...

You do not know me, but I want you to know that I am praying. I am a friend of Suzanne Thompson Timmons and she posted a prayer request on Facebook. All of her friends are praying now. Rest in that. We're counting on God for a miracle and believe that they DO still happen!! Lifting you up as I write this note. Please keep us posted. I pray for much improvement in the days to come. I also pray that God will keep his arms around all of you, no matter what.
Beverly Cottingham Richardson

Anonymous said...

Jenni,
Debbie and I are praying for you and Josh. We are having others pray for also. It is in God we place our hope.
Love Yall,
The Templetons

Cherie said...

Jenni,

My dear cousin, when I saw the pictures of you and Josh I remarked how happy you two look and how much you look like your mother. You have my prayers and the prayers of as many more that I can lead to this page.

God is our refuge.

Cherie'

Anonymous said...

I don't know you all but am a friend of Karen Granger - I'm praying for you all and will send this out on my prayer chain.

God bless,
Shannon

MIssy Benfield said...

I am a friend of Chantae McDowell, and just wanted you to know I am praying for you.!!Missy Benfield

Amanda Swindell said...

Hi Josh,
I don't know if you remember me from Freshman PE at WLHS (and as Lindsey's roommate at UNC), but I saw the link on facebook. I'll be thinking and praying of you and Jenni.

Amanda Cole Swindell

Amber said...

I don't know you guys and you don't know me. April Smith emailed this to me. I just want to let you know i will be praying for you. I am going to help out by visiting the site as often as possible. I am also going to email this to all my contacts and ask them to do the same. God Bless you all!!!

Anonymous said...

I'mm continuing to pray for Jenni,and also for you Josh,and all the family. I know it's extremely hard for everyone. As you cling to one another during this time, know that God is there in the midst through the high times and the low. Continue to trust and have faith. I taught in the Language Arts inclusion class with Jenni and both loved to talk about God's awesome power and the power of prayer.

Anonymous said...

Jenni,
Again, like others that have posted on your blog, you don't me and we have never meet, but, I am a friend of your Aunt Janet's. Janet emailed me and requested special prayers and I just wanted you to know you and your family will be our prayers and thoughts.
Sandy Hembree

Anonymous said...

I don't know you but I am faith and believe in the power of God and the Holy Spirit. I pray that God brings you all peace and healing. God Bless you all. Cummings Family (uncp alumni)

GALE said...

SAW A FRIENDS GREENSPOT SHOUTOUT THAT JENNI NEEDS PRAYER. SO HERE I AM . PRAYING THAT GOD WILL BLESS YOU AND YOUR FAMILY AS U GO THRU THIS DIFFICULT TIME. HAVING HAD A GRANDSON WHO HAD 4 OPENHEART SURGERIES, I KNOW HOW CHAOTIC THINGS CAN GET. GOD CAN AND DOES HEAL AND HE DOES STILL PERFORM MIRACLES TODAY. ALWAYS KEEP YOUR SPIRITS UP NO MATTER HOW BLEAK THE DOCS ARE. HE IS PLEASED WITH OUR FAITH, AND UNDERSTANDS OUR PAIN AND SORROW IN THE BIBLE IT SAYS{JESUS WEPT}. IBELIEVE THIS TO SAY HE ALWAYS WANTS WHATS BEST 4 US AND HE LOVES WHEN WE JUST TURN AN IMPOSSIBLE SITUATION OVER 2 HIM AND HE SHOWS HIS GREAT POWER BEST WHEN WE LET GO. LOVE AND HUGS ,,GALESPAINTINGS

Anonymous said...

Very dear friends, Jan and Rog Wagner and relative to Jenni ask us to keep her in our prayers. Jenni, you and your family are in our thoughts and prayers. May God bless you all during this trying time. Les Oenning

Anonymous said...

I don't know you all but Chad Conkling forwarded your prayer request to me - I'm praying for you all and will send this out on my prayer chain. It is written that He will not put on us more that we can bear. I believe God is faithful and I know from personal experience that He sustains. My prayer buddies will be Aaron's to you Moseses and hold your arms up when you tire. A special scripture for me is the 23rd Psalm. I pray this scripture over Jenni and all her loved ones.

God bless,

Beverly Mangum

jeff fuller said...

jenni and josh,
our thoughts are with you during this trying time.
keep your spirits, I know that this is a tough road to travel.
jenni and I are cousins, I may have met once or twice. I saw your pictures on the blog site, and I was reminded on how much i missed marie.

God's everlasting love to you.

Jeff Fuller
jwfullrz@yahoo.com

Anonymous said...

FRIENDS OF VALERIE SIPE, WILL CONTINUE PRAYING FOR YOU ALL...IF YOU NEED ANYTHING LET US KNOW!!!
BRETT & AMANDA BEAL

Anonymous said...

FREIND OF VALERIE SIPE, PLEASE KNOW I AM PRAYING FOR JENNI AND HER FAMILY, WITH EVERYTHING IN GODS HANDS YOU KNOW ANYTHING IS POSSIBLE!!!
CLAUDE PHILLIPS

Sonda Underwood said...

I work at Love Memorial and I am keeping your family in my prayers. At times when we don't have the words to pray He knows the desires of our heart. He loves each of His children and promises to guide and strengthen us.

Anonymous said...

As a prayer warrior who has rec'd notification from Joann Purus - please know that I and many others are adding to the list of those praying for you!! ~Tina Pearsall

Anonymous said...

I'm praying for you guys! Try to stay strong no matter how hard it is. A positive attitude can make unbearable things seem a little more bearable. Y'all can make it through this with God's help. Just have peace knowing that God is in control.
Andrea Dillon

Anonymous said...

Hey Josh,
I haven't seen you since high school, I guess. I am working at Love with your mom. I just wanted to let you know I have been and will be praying for you. God Bless you.
Bartley

Anonymous said...

Josh and Jenni..
I am Melissa Brown Kidd's mother-In-Law and I want you both to know we are praying for you both..God is in control and he will take care of you...We have you on the prayer list at church. Just know you have thousands of people praying for you every day..And if you need anything we are all a phone call away..Never give up on God because he never gives up on you..
Trust in him always...
God Bless You Both So Much and all of your family too...

Anonymous said...

Jenni..
I am Herb & Ann Craig's granddaughter... I have attended church with Jenni & Judy when we were younger....My prayers go to her & the family... I'll try to help yall with the TRAFFIC on the site.... God be with you ALL!
Love,
Cami (Parrish)Holden

Anonymous said...

Hi Jenni and Josh,
I heard about you through Billie Bryant's ministry and wanted to let you know my thoughts and prayers are with you both. Jenni, May God give you peace and healing and Josh I pray that God will give you the strength you need to get through this and be there for her. Remember the verse: "I can do all things through Christ who strengthens me." May God keep you both in His loving care.
Mary (from Virginia)

Anonymous said...

Just read about Jenni on our church blog from Sara A. (a friend of hers). Wanted Jenni, you and the family to know that my prayers are with you all. It is in times like these that God shines through with HIS power and love! Please know that regardless of what happens - something good will come of it. Remember that even though Satan is at battle (through our health, finances, etc.), God and His believers win - we will be victorious.
In Christ love, Ellen

Anonymous said...

Hey, I have been keeping up with all this and I am keeping all of you in my prayers. I am sorry for your loss and I pray that God will comfprt you in this time and he will give you strength, peace and understanding.

God Bless.

Anonymous said...

Hello Guys! Just another friend in Christ who wants you to know that this day, Jenni is in the arms of God and is totally and completely healed. No more pain, no more struggling, just peace and the incredible presence of our Almighty God. As your hearts ache with the loss, remember that this is not the end, but simply graduation day and you will see Jenni again, not in this life, but a greater life to come!

God Bless and Keep you all! For He is faithful!

Jennifer F. said...

To Jenni's Family:
I am a Practitioner in Hickory that saw Jenni. Everyone in our office was so saddened and shocked by the news of her passing. She was a wonderful young lady. Certainly a life cut short much too soon. Despite all that she endured, she always had a smile on her face. I am very proud and privileged to have known her. She is an inspiration. Our thoughts and prayers are with your family.

Anonymous said...

May the Lord give you peace and comfort in the time of your great loss.

Anonymous said...

This place is not our home. May she rejoice with the angels and peace be to those she left behind. All those who call upon the Lord will see her again.
friend of Gerald & Karen Weideman and sister in Christ

Anonymous said...

Josh and all of Jenni's family. I kept Jenni and Judy at my daycare when they were infants. We all loved them very much and were very proud of them as they grew in the love of God and family. Jenni will be missed by so many. The good memories we have of her and the life she lived and the belief she portrayed along with Josh, will be an inspiration to people everytime her name is mentioned. Jim, you did a great job as a father.
Vickie

Anonymous said...

hey
I am lindsey hughes Jenni was my 8th grade homebase and language teacher... impraying for You and your family.

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